8th Annual Into The Light Dinner Gala

Thursday, November 21, 2024

Lower Manhattan, New York City

Cocktail Reception 6PM

Dinner & Awards 7PM

Gala Auction all Evening

Please join the Epilepsy Foundation of Metropolitan New York as we mark our 57th year of providing vital services and support to the NYC epilepsy community, and as we proudly honor Lara V. Marcuse, MD who is the Associate Professor of Neurology and the Co-Director of the Mount Sinai Epilepsy Center, as well as Saadi Ghatan, MD who is a Professor of Neurosurgery and Pediatrics at the Icahn School of Medicine at Mount Sinai and the Chair of Neurosurgery at Mount Sinai West and Mount Sinai Morningside.

Over the years, Lara and Saadi have served on the EFMNY Professional Advisory Board, lending their highly regarded professional experience and insights. Along with their Mount Sinai colleagues, they are eager and engaged participants in EFMNY community events and activities, helping the EFMNY to fully meet its important mission of service to those with epilepsy and seizures and their families in our NYEC community.

After studying mathematics and neurobiology at Cornell University, and then spending some years assisting people with psychiatric disabilities experiencing homelessness in NYC, Dr. Marcuse commenced her medical training at Albert Einstein, followed by her neurology residency and fellowship at NYU. In 2009, she began what has been for her the adventure of a lifetime, starting the Mount Sinai Epilepsy Center (with Madeline Fields). Since then, the Mount Sinai Epilepsy Center has grown to include multiple hospitals and out-patient settings, accompanied by a world-class innovative and compassionate epilepsy surgical program. Lara has received notable awards such as the ACNS award for best research paper and the Cullman award of excellence in patient care. Teaching is central for her, and she has co-authored the 2nd and 3rd editions of the Rowan Primer of EEG, making the field digestible for every student of EEG.

Dr. Ghatan’s career is marked by pioneering work in minimally invasive neurosurgery and innovative treatments for epilepsy. After his residency and fellowship in Pediatric Neurosurgery at the Children’s Hospital in Seattle, Washington, he trained with fellowships in London, England. Saadi’s expertise includes advanced techniques such as endoscopy, brain mapping with electrophysiological monitoring, and the use of responsive neurostimulation (RNS) for epilepsy. Of note, he was the first to implant a NeuroPace RNS in a child with uncontrolled epilepsy, and he enjoys one of the highest numbers of RNS implants worldwide. Dr. Ghatan’s leadership has been central to advancing the Adult and Pediatric Surgery Programs at Mount Sinai, accompanied by his extensive research and investigation, prolific writings, and widely recognized clinical expertise. Saadi’s innovative contributions have made him a pivotal figure in epilepsy surgery.

It is a genuine honor for The Epilepsy Foundation of Metropolitan New York to recognize Lara and Saadi this year. They are superb champions of our shared Epilepsy Cause.



PAST SPECIAL EVENTS



12th Annual Walk to End Epilepsy in New York City

Sunday, September 29, 2024

Starting at 9:00 AM

Pier 25, Hudson River Park, NYC

Our 12th Annual Walk is returning in 2024!! And we are thrilled to have the continued support of our generous and loyal Sponsors. This year, the Walk is free to everyone.

We encourage you and your family, friends, and colleagues to register and to raise funds that are so important for our ongoing shared Epilepsy cause.

On Sunday, September 29, please plan to join us at the 12th Annual Walk to End Epilepsy in New York City. Together, all of us can make a true difference!

REGISTER TODAY!



3rd Annual Into The Light Golf Tournament

Monday, June 24, 2024

Ardsley Country Club, Ardsley, New York

After last year’s successful initial event held at the prestigious Ardsley Country Club in Ardsley, NY, come and join us in 2024 for a Hole Lot of Fun!

Join us to support EFMNY’s Mission while having a fun day on the GREENS. The day includes Breakfast Buffet, Halfway House BBQ Station, Golf Course Beverage Cart, Cocktail Reception, Pro Shop credit Raffle, and more. Prizes given for the longest drive, lowest score, closest to the pin, and much more!

9:00AM Registration and Breakfast Buffet 10:30AM Shotgun Start Golf Scramble 3:00PM Cocktail Hour, Raw Bar, Hors D’oeuvres, Raffle, and Awards

Save the date!

Let’s have a HOLE lot of fun!!

For more details on Sponsorship Opportunities and Participation, please contact Chilton E. Harper, MPA: charper@efmny.org or 917-856-5717


Honor Your NYC Epilepsy Healthcare Heroes!

April 1 – April 30, 2024

New York City, NY

NYRR-2020-Half-EFMNY-Website-1

This April donate and honor your NYC Epilepsy Healthcare Heroes!

This April kicks off the EFMNY’s Healthcare Workers Celebration to honor a community nurse, doctor, medical center employee, volunteer, or anyone who makes an important difference in the life of a person with epilepsy.

By becoming a caring donor, you are honoring your Healthcare Hero and joining a special community that supports the EFMNY’s vital mission of service in New York City.

When your Donation is acknowledged, you will have the opportunity to share your Healthcare Hero stories, for EFMNY to post them on our social media sites including Instagram, Facebook, and X (formerly Twitter)!

Please consider a Donation of $25, $50, $100, $250, $500, $1,000, or other.

For more information and for sharing your Epilepsy Healthcare Hero stories on social media, please contact Chilton E. Harper, MPA: charper@efmny.org or 917-856-5717


SEIZE THE CURE 4 EPILEPSY Presents Bronx Epilepsy Awareness & Education Event

Saturday, April 20, 2024

Bronx, NY

NYRR-2020-Half-EFMNY-Website-1


United Airlines NYC Half Marathon 2024

Sunday, March 17, 2024

#UnitedNYCHalf

NYRR-2020-Half-EFMNY-Website-1

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the United Airlines NYC Half Marathon 2024! When you support Team EFMNY, you are helping us raise epilepsy awareness and further our ‘Into The Light’ programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The United NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners and support Team EFMNY today!


2023 Annual Holiday Campaign
with Giving Tuesday, November 28!

2020_Annual Holiday Campaign_Website image

Tuesday, November 28, 2023 – Monday, January 8, 2024

During this festive time of the year, as we gather with our loved ones and reflect on how grateful we are to have a life filled with many blessings and joy, let us honor others who live in very different circumstances, with a generous Gift to the EFMNY 2023 Annual Holiday Campaign with Giving Tuesday.


7th Annual Into The Light Dinner Gala

Thursday, November 16, 2023

Lower Manhattan, New York City

Cocktail Reception 6PM

Dinner & Awards 7PM

Gala Auction all Evening

Please join the Epilepsy Foundation of Metropolitan New York as we celebrate our 56th year of providing vital services and supports to the NYC Epilepsy Community, and as we gratefully recognize Arthur C. Grant MD, PhD, who is Professor of Neurology and Director of the Epilepsy Division at SUNY Downstate Health Sciences University.

Over the past two decades Arthur has served on the EFMNY Professional Advisory Board where he has contributed his invaluable professional insights and ideas. Along with his SUNY Downstate professional colleagues, Arthur has consistently participated in the EFMNY’s local events and activities, strongly backing the EFMNY’s vital mission of service to those with epilepsy and seizures and their families in our NYC community.

Arthur received his undergraduate and PhD degrees from the Massachusetts Institute of Technology. His PhD thesis advisor was the legendary neurophysiologist Dr. Jerome Lettvin who sparked his interest in brain function, clinical neurology, and epilepsy. He attended medical school at Case Western Reserve University in Cleveland, OH, and completed his residency in Neurology and fellowship in EEG and Clinical Neurophysiology at Emory University in Atlanta, GA. He has been Director of the Epilepsy Division at SUNY Downstate since 2008. He is board certified in Neurology, Epilepsy, and Clinical Neurophysiology.

Dr. Grant’s research interests include the effect of epilepsy on perception, improving accuracy of EEG interpretation, culturally-based beliefs about epilepsy, and improving medication adherence. He has published over fifty articles in peer-reviewed journals and is an active member of several professional organizations including the American Academy of Neurology, the American Epilepsy Society, Physicians for Human Rights, and the Royal Society of Medicine.

It is a true honor for The Epilepsy Foundation of Metropolitan New York to recognize Arthur this year. He is a great champion of our shared Epilepsy Cause.

All funds raised for the EFMNY 7th Annual Into The Light Dinner Gala will go directly towards supporting our vocational, educational, advocacy, and clinical services. Enjoy the lovely evening amid friends and colleagues, while making a genuine difference in the lives of people with epilepsy and their families.

For any information, please contact
Chilton E. Harper, MPA:
charper@efmny.org or 917-856-5717

2023 TCS New York City Marathon

Sunday, November 5, 2023

NYRR-2020-Half-EFMNY-Website-1

Once again in 2023, the EFMNY Team Epilepsy Road Warriors look forward to being designated as an Official Participant in what has become one of the world’s truly great yearly sporting events. Please stand by for more details, which will be made available as soon as we receive this designation. As of April 1, 2023, be sure to let us know if you wish to be a part of our EFMNY Team as spots go fast!!


“The EFMNY Road Warriors have proudly run in NYRR events over the past decades, and we are looking forward to another successful event this coming November 2023. NYRR is such a wonderful partner for us, as both our organizations strongly believe in charitably helping others who count on our shared generosity of spirit and action.”

EFMNY Executive Director Elinor LaTouche, MPA


11th Annual Walk to End Epilepsy in New York City

Sunday, October 1, 2023

Starting at 9:00 AM

Pier 25, Hudson River Park, NYC

Our 11th Annual Walk is returning in 2023!! And we are thrilled to have the continued support of our generous and loyal Sponsors. This year, the Walk is free to everyone.

We encourage you and your family, friends, and colleagues to register and to raise funds that are so important for our ongoing shared Epilepsy cause.

On Sunday, October 1, please plan to join us at the 11th Annual Walk to End Epilepsy in New York City. Together, all of us can make a true difference!

REGISTER TODAY!

https://organizations.hakuapp.com/sites/organization_sites/78b56df39ecbd6715c8d


2nd Annual Into The Light Golf Tournament

Monday, June 26, 2023

Ardsley Country Club, Ardsley, New York

After last year’s successful initial event held at the prestigious Ardsley Country Club in Ardsley, NY, come and join us in 2023 for a Hole Lot of Fun!

Join us to support EFMNY’s Mission while having a fun day on the GREENS. The day includes Breakfast Buffet, Halfway House BBQ Station, Golf Course Beverage Cart, Cocktail Reception, Pro Shop credit Raffle, and more. Prizes given for the longest drive, lowest score, closest to the pin, and much more!

9:00AM Registration and Breakfast Buffet
10:30AM Shotgun Start Golf Scramble
3:00PM Cocktail Hour, Raw Bar, Hors D’oeuvres, Raffle, and Awards

Save the date!

Let’s have a HOLE lot of fun!!

For more details on Sponsorship Opportunities and Participation, please contact
Chilton E. Harper, MPA:
charper@efmny.org or 917-856-5717


The Trouba Creative Expressions Arts Program Public Art Exhibition

June 22 – July 10, 2023

Main Lobby, 65 Broadway, Lower Manhattan

The Epilepsy Foundation of Metropolitan New York, along with the generous caring support of Jacob and Kelly Trouba and The WVI Dolphin Foundation, proudly announces ‘The Trouba Creative Expressions Arts Program Public Art Exhibition’ that is open to the visiting public at no cost through Monday, July 10 in the main lobby of 65 Broadway in lower Manhattan.

Over the past months, The Trouba Creative Expressions Arts Program has provided weekly group and individual art sessions to program participants living with epilepsy. This program has fostered a true means of self-discovery, artistic creativity, autonomy. and personal growth for the participants.

“Jacob and Kelly’s and The WVI Dolphin Foundation’s generous support will enable the EFMNY to create additional opportunities for people with epilepsy to become more independent and to lead enriching and fulfilling lives. Please come see the artwork and meet the artists and their Art Therapist Cici Ramírez, MPS!” -Elinor LaTouche, MPA

Thank you for being with us at the Thursday, June 22nd opening!

For more information, please contact
Chilton E. Harper, MPA:
charper@efmny.org or 917-856-5717


Honor Your NYC Epilepsy Healthcare Heroes!

April 1 – April 30, 2023

New York City, NY

NYRR-2020-Half-EFMNY-Website-1

This April kicks off the EFMNY’s Healthcare Workers Celebration to honor a community nurse, doctor, medical center employee, volunteer, or anyone who makes an important difference in the life of a person with epilepsy.

By becoming a caring donor, you are honoring your Healthcare Hero and joining a special community that supports the EFMNY’s vital mission of service in New York City.

When your Donation is acknowledged, you will have the opportunity to share your Healthcare Hero stories, for us to post them on our social media sites!

Please consider a Donation of $25, $50, $100, $250, $500, $1,000, or other.

For any information, please contact
Chilton E. Harper, MPA:
charper@efmny.org or 917-856-5717


United Airlines NYC Half Marathon 2023

Sunday, March 19, 2023

#UnitedNYCHalf

NYRR-2020-Half-EFMNY-Website-1

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the United Airlines NYC Half Marathon 2022!

When you support Team EFMNY, you are helping us raise epilepsy awareness and further our Into The Light programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The United NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners and support Team EFMNY today!


2022 Annual Holiday Campaign
with Giving Tuesday, November 29!

2020_Annual Holiday Campaign_Website image

Tuesday, November 29, 2022 – Monday, January 9, 2023

During this festive time of the year, as we gather with our loved ones
and reflect on how grateful we are to have a life filled with many blessings and joy, let us honor others who live in very different circumstances, with a generous Gift to the EFMNY 2022 Annual Holiday Campaign with Giving Tuesday.


6th Annual Into The Light Dinner Gala

Thursday, November 17, 2022

The View at the Battery, Lower Manhattan, NYC

Cocktail Reception 6PM
Dinner & Awards 7PM
Gala Auction all Evening

Please join the Epilepsy Foundation of Metropolitan New York as we celebrate our 55th year of providing important services and supports to the NYC Epilepsy Community, and as we proudly recognize Carl W. Bazil, MD, PhD, who is the Caitlin Tynan Doyle Professor of Neurology, College of Physicians and Surgeons at Columbia University, Division of Epilepsy and Sleep Disorders.

Since 2008, the EFMNY has been most fortunate to count on Carl’s positive contributions on its prestigious Professional Advisory Board, where he contributes his experienced professional insights and perspective. Carl has always been there for the EFMNY’s local events and activities along with his professional and personal colleagues, meaningfully supporting our vital mission of service to those with epilepsy and seizures and their families in the NYC community.

Carl received his undergraduate degree from the Massachusetts Institute of Technology, and his PhD (Pharmacology) and medical degree from Emory University. He was a Neurology Resident and Chief Resident at New York University and a Clinical Fellow in Epilepsy/EEG at the Neurological Institute of Columbia University. He was the Director of the Division of Epilepsy and Sleep Disorders at Columbia University from 2008-2021. He is board certified in Neurology, Epilepsy, Clinical Neurophysiology, and Sleep Medicine.

Carl’s research interests are primarily in developing novel treatments for refractory epilepsy, and in the interactions between epilepsy, sleep, and sleep disorders. He is a member of the Editorial Boards of JAMA Neurology and The Medical Letter, and previously for Current Neurology and Neuroscience Reports and Epilepsy.com. He has published over 100 articles in professional journals, books on epilepsy (What do I do now? Epilepsy), a book on sleep and epilepsy (Sleep and Epilepsy: The Clinical Spectrum), a book for patients on epilepsy (Living Well with Epilepsy and Other Seizure Disorders), and contributed over 20 chapters to various texts in his field.

The Epilepsy Foundation of Metropolitan New York is very honored to recognize Carl this year. He is a true champion of our shared epilepsy Cause.

All funds raised will go directly towards supporting our vocational, educational, advocacy, and clinical services. Enjoy the lovely evening amid friends and colleagues, while making a genuine difference in the lives of persons with epilepsy.

Register Now:

160409_EPILEPSY_FOUNDATION_039_website_copy

Table for 10 - $3,000
Registrant's name:
Individual Seats - $300 each
Quantity:
Registrant's name:
I will not be attending but wish to donate.
Amount:
Donor's name:

Please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717 for additional Sponsorship, Ticket, and Donation information.

2022 TCS New York City Marathon

Sunday, November 6, 2022

Once again in 2022, the EFMNY Epilepsy Road Warriors look forward to
being designated as an Official Participant in what has become one of the world’s truly great yearly sporting events. Please stand by for more details, which will be made available as soon as we receive this
designation.


“The EFMNY Road Warriors have proudly run in NYRR events over the past decades, and we are looking forward to another successful event this coming November 2022. NYRR is such a wonderful partner for us, as both our organizations strongly believe in charitably helping others who count on our shared generosity of spirit and action.”

EFMNY Executive Director Elinor LaTouche, MPA


2022 Inaugural Virtual Craft Beer Tasting

Thursday, October 13, 2022

7:00 PM Start

Zoom / Flagship Brewing Company, Staten Island, NY

The EFMNY and Flagship Brewing Co. proudly present the Inaugural EFMNY Virtual Craft Beer Tasting. Please join us for the EFMNY’s first Virtual / Live Craft Beer Tasting event! Jay and the good folks at Flagship Brewing Co. in Staten Island are looking forward to welcoming you, and to sharing their knowledge of the beer brewing world, accompanied by a series a tasty beer samples that will be available to the event participants. Enjoy a discussion on the brewing process and taste five Flagship brews. $50 registration (NYS Residents Only) which includes beer, shipping, and an EFMNY donation. Zoom link to be provided before the event. Stand by for more details soon!

For more information on registering, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717.


10th Annual Walk to End Epilepsy in New York City

Sunday, September 25, 2022

Starting at 9:00 AM

Pier 25, Hudson River Park, NYC

Our 10th Annual Walk is returning in 2022!! And we are thrilled to have the continued support of our generous and loyal Sponsors. This year, the Walk is free to everyone.

We encourage you and your family, friends, and colleagues to register and to raise funds that are so important for our ongoing shared Epilepsy cause.

On Sunday, September 25, please plan to join us at the 10th Annual Walk to End Epilepsy in New York City. Together, all of us can make a true difference!

We thank our Event Sponsors:


The EFMNY Into The Light First Annual Golf Tournament

Monday, August 29, 2022

Ardsley Country Club, Ardsley, New York

Save the date!! Join us to support EFMNY’s Mission while having a fun day on the GREENS. The day includes Breakfast Buffet, Halfway House BBQ Station, Golf Course Beverage Cart, Cocktail Reception, Pro Shop credit Raffle, and more. Prizes given for the longest drive, lowest score, closest to the pin, and much more!

For more details on Sponsorship Opportunities and Participation please contact

Chilton Harper, MPA at charper@efmny.org or 917-856-5717

The EFMNY is an affiliate member of the CLC Group, headquartered in Mount Kisco, NY


United Airlines NYC Half Marathon 2022

Sunday, March 20, 2022

#UnitedNYCHalf

NYRR-2020-Half-EFMNY-Website-1

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the United Airlines NYC Half Marathon 2022!

When you support Team EFMNY, you are helping us raise epilepsy awareness and further our Into The Light programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The United NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners and support Team EFMNY today!

2021 Annual Holiday Campaign
with Giving Tuesday, November 30!

2020_Annual Holiday Campaign_Website image

Tuesday, November 30, 2021 – Monday, January 10, 2022

While the Holiday Season can be a wonderful time of year for many, it can be a very challenging time for those with epilepsy and seizures. The added intricacies of the current COVID-19 pandemic only add further discomfort for these kind individuals. Now, more than ever, we at the EFMNY are asking you to please help us to continue to make a true difference in their lives. A generous gift to The EFMNY 2021 Annual Holiday Campaign is urgently needed now, to allow us to meaningfully assist them, and their families and friends, as they turn to us for support.

The EFMNY has helped to change lives since 1967. As New York City’s only specialized social service organization dedicated to serving those with epilepsy, we furnish a range of counseling, educational, vocational, and social work services that provide genuine assistance and real hope.

This year we have again meaningfully assisted thousands and thousands of persons. Yet there is much more remaining to do, and never more so than now, due to COVID-19, if we had the additional funds to do so. Our government funding covers a good portion of our costs, but not nearly enough. This means that public support is more essential than ever. Your thoughtful gift allows more deserving persons to receive help, hope, and awareness about living with epilepsy.

It is your caring private contribution that permits us to continue to be of service. With our deepest gratitude and appreciation, we wish you and yours a Healthy and Happy Holiday Season!


National Epilepsy Awareness Month

November 2021

November is National Epilepsy Awareness Month

The month of November is when we celebrate National Epilepsy Awareness Month. During this month, the Epilepsy Foundation of America and its national regional affiliates, such as the Epilepsy Foundation of Metropolitan New York (EFMNY), come together to provide information about prevention, treatment, research, and resources to fight epilepsy, and most importantly, to assist in the ongoing search for a cure.

For every four persons who pass away from breast cancer, five persons pass away from epilepsy. And one in twenty-six persons will develop epilepsy in his/her lifetime.

Epilepsy is a central nervous system disorder characterized by abnormal brain activity, causing seizures and/or periods of uncommon behavior, sensations, and often a loss of awareness. Epilepsy can occur in anyone, regardless of age, sex, race, and ethnic tradition. Sadly, epilepsy has been misunderstood for centuries, creating a profound astigmatism.

When the brain’s highly active electrical signals fail, the affected individual experiences a seizure. This then provokes a derangement in normal brain activity with a related short-lived nerve cells communication problem. Most seizures can last from a few seconds to a few minutes, and a person can be disoriented or drowsy afterward. Seizure symptoms are varied, from one person to an0ther. One individual even might not recall a seizure and what occurred just before it, while another individual might be very alert after a seizure.

The EFMNY mission is to provide epilepsy awareness, advocacy, and vital services/supports, not only to individuals and families affected by epilepsy but also to raise awareness within and beyond our community. Together, we can make a true difference, for those with epilepsy and seizures and their families in the NYC community.

The Epilepsy Foundation of Metropolitan New York (EFMNY) is leveraging its community’s strength to reduce the fear surrounding epilepsy and bring hope to those facing challenges. Through a social media campaign called #RemoveTheFilter, the EFMNY is asking everyone to “remove the filter” and make a difference for the more than 215,200 people in New York State with epilepsy. A few ways you can #RemoveTheFilter:

Share your epilepsy journey to inspire action

Get Seizure First Aid Ready to help save a life

Become an Epilepsy Awareness Ambassador to raise awareness

Join the Epilepsy Foundation of Metropolitan New York’s efforts at efmny.org

#NEAM2021 #RemoveTheFilter


5th Annual Into The Light Dinner Gala

Thursday, November 18, 2021

The View at the Battery, Lower Manhattan, NYC

Cocktail Reception 6PM
Dinner & Awards 7PM
Gala Auction all Evening

Please join the Epilepsy Foundation of Metropolitan New York as we celebrate our 54th year of providing vital services and supports to the NYC epilepsy community, and as we recognize this years Distinguished Service Honoree Fred A. Lado, MD, PhD, who is the Director of Epilepsy for the Northwell Health Central and Eastern Regions.

Over many years now, the EFMNY has had the good fortune to have Fred’s proactive presence on its Board of Directors, and as Vice Chair on its highly regarded Professional Advisory Board. His experienced and timely professional views and perspective are greatly valued by his colleagues. As well, whenever the EFMNY has a significant local event or activity, Fred is unfailingly there, giving 110% of himself and his medical center, fully backing our shared essential mission of service to those with epilepsy and seizures and their families in the NYC community.

Fred earned his MD and PhD degrees from the NYU School of Medicine, having done his thesis on the use of magnetoencephalography (MEG) to examine human electrical brain activity. He completed his neurology residency at York Hospital Weill Cornell Medical Center, and his fellowship training at Montefiore Hospital Medical Center, where he remained on the faculty for 18 years prior to joining Northwell Health in 2017. Presently, at Northwell Health, Fred leads a multi-disciplinary Team of neurology, neurosurgery, neuroradiology, and neuropsychology clinicians, epilepsy trained nurses, EEG technologists, a nurse practitioner, and a social worker, with the common professional focus on providing every individual the best care possible.

Along with his important roles on the EFMNY Boards, Fred has also served in numerous national leadership positions, with the American Epilepsy Society (AES), the International League Against Epilepsy (ILAE), and the National Association of Epilepsy Centers (NAEC).

It is indeed a tremendous honor for the Epilepsy Foundation of Metropolitan New York to recognize Fred this year. He truly represents what is most professional, noble, and giving in the epilepsy medical field.

All funds raised will go directly towards supporting our vocational, educational, advocacy, and clinical services. Enjoy the lovely evening amid friends and colleagues, while making a genuine difference in the lives of persons with epilepsy.

Register Now:

160409_EPILEPSY_FOUNDATION_039_website_copy

Table for 10 - $3,000
Registrant's name:
Individual Seats - $300 each
Quantity:
Registrant's name:
I will not be attending but wish to donate.
Amount:
Donor's name:

Please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717 for additional Sponsorship, Ticket, and Donation information.


2021 TCS New York City Marathon

Sunday, November 7, 2021
New York, NY

The Epilepsy Foundation of Metropolitan New York Named an Official Charity Partner of the

2021 TCS New York City Marathon!

The Epilepsy Foundation of Metropolitan New York (EFMNY) was named an Official Charity Partner for the 2021 TCS New York City Marathon, taking place on November 7. This year serves as the 50th celebratoryrunning of the marathon. The EFMNY will be among the more than 400 official charity partners providing thousands of runners the opportunity to run in the world’s most popular marathon.


“The EFMNY Road Warriors have proudly run in NYRR events over the past decades, and we are looking forward to another successful event this coming November 2021. NYRR is such a wonderful partner for us, as both our organizations strongly believe in charitably helping others who count on our shared generosity of spirit and action.”

EFMNY Executive Director Elinor LaTouche, MPA

“Supporting charitable causes and organizations are a long-standing tradition of the TCS New York City Marathon as it serves as one of the world’s largest fundraising platforms. The marathon exemplifies the running community’s spirit of giving back, and no group demonstrates that more than the thousands who choose to run for charity. We are proud to support the efforts of the Epilepsy Foundation of Metropolitan New York team and the positive impact they have made to their community.”

Christine Burke, Senior VP of Strategic Partnerships, NYRR


For more information, please contact Chilton E. Harper, MPA at

charper@efmny.org or 917-856-5717


Honor Your NYC Epilepsy Healthcare Heroes!

April 1 – April 30, 2021

New York City, NY

This April kicks off the EFMNY’s Healthcare Workers Celebration to honor a community nurse, doctor, medical center employee, volunteer, or anyone who makes an important difference in the life of a person with epilepsy.

By becoming a caring donor, you are honoring your Healthcare Hero and joining a special community that supports the EFMNY’s vital mission of service in New York City.

When your Donation is acknowledged, you will have the opportunity to share your Healthcare Hero stories, for us to post them on our social media sites!

Please consider a Donation of $25, $50, $100, $250, $500, $1,000, or other.

For any information, please contact Chilton E. Harper, MPA at
charper@efmny.org or 917-856-5717


2020 Annual Holiday Campaign
with Giving Tuesday, December 1!

2020_Annual Holiday Campaign_Website image

Tuesday, December 1, 2020 – Monday, January 4, 2021

While the Holiday Season can be a wonderful time of year for many, it can be a very challenging time for those with epilepsy and seizures. The added intricacies of the current COVID-19 pandemic only add further discomfort for these kind individuals. Now, more than ever, we at the EFMNY are asking you to please help us to continue to make a true difference in their lives. A generous gift to The EFMNY 2020 Annual Holiday Campaign is urgently needed now, to allow us to meaningfully assist them, and their families and friends, as they turn to us for support.

The EFMNY has helped to change lives since 1967. As New York City’s only specialized social service organization dedicated to serving those with epilepsy, we furnish a range of counseling, educational, vocational, and social work services that provide genuine assistance and real hope.

This year we have again meaningfully assisted thousands and thousands of persons. Yet there is much more remaining to do, and never more so than now, due to COVID-19, if we had the additional funds to do so. Our government funding covers a good portion of our costs, but not nearly enough. This means that public support is more essential than ever. Your thoughtful gift allows more deserving persons to receive help, hope, and awareness about living with epilepsy.

It is your caring private contribution that permits us to continue to be of service. With our deepest gratitude and appreciation, we wish you and yours a Healthy and Happy Holiday Season!


National Epilepsy Awareness Month

November 2020

EFMNY_EFA logos rebrand_header banner

The month of November is when we celebrate National Epilepsy Awareness Month. During this month, the Epilepsy Foundation of America and its national regional affiliates, such as the Epilepsy Foundation of Metropolitan New York (EFMNY), come together to provide information about prevention, treatment, research, and resources to fight epilepsy, and most importantly, to assist in the ongoing search for a cure.

For every four persons who pass away from breast cancer, five persons pass away from epilepsy. And one in twenty-six persons will develop epilepsy in his/her lifetime.

Epilepsy is a central nervous system disorder characterized by abnormal brain activity, causing seizures and/or periods of uncommon behavior, sensations, and often a loss of awareness. Epilepsy can occur in anyone, regardless of age, sex, race, and ethnic tradition. Sadly, epilepsy has been misunderstood for centuries, creating a profound astigmatism.

When the brain’s highly active electrical signals fail, the affected individual experiences a seizure. This then provokes a derangement in normal brain activity with a related short-lived nerve cells communication problem. Most seizures can last from a few seconds to a few minutes, and a person can be disoriented or drowsy afterward. Seizure symptoms are varied, from one person to an0ther. One individual even might not recall a seizure and what occurred just before it, while another individual might be very alert after a seizure.

The EFMNY mission is to provide epilepsy awareness, advocacy, and vital services/supports, not only to individuals and families affected by epilepsy but also to raise awareness within and beyond our community. Together, we can make a true difference, for those with epilepsy and seizures and their families in the NYC community.

For more information, please visit efmny.org or email us at info@efmny.org

National Epilepsy Awareness Month:

Join the Seizure First Aid Challenge

Looking to support the epilepsy cause during National Epilepsy Awareness Month (NEAM) this November? Join the Epilepsy Foundation of Metropolitan New York’s Seizure First Aid Challenge and get certified in Seizure First Aid. The Epilepsy Foundation recently launched the first and only Seizure Recognition and First Aid certification training to support the 3.4 million people in the U.S. living with epilepsy. The free Seizure Recognition and First Aid certification training provides information to increase the knowledge, skills and confidence in recognizing seizures and safely administering seizure first aid. The certification training, led by Epilepsy Foundation-certified instructors, is available through live webinars scheduled between now and November 30. Help us reach our goal of training 2,020 people during NEAM nationwide.

To register for a training, please visit epilepsy.com/firstaid


CT COLOR WTEE LONG HORIZONTAL LOCKUP

IS PROUD TO ANNOUNCE

Virtual 9th Annual Walk to End Epilepsy in New York City

Monday, August 17 – Thursday, December 31, 2020
Celebratory Zoom Call Day of the Virtual Walk is Sunday, October 18, 11:00AM

The EFMNY Annual Walk ends this year on Monday, November 30!

Thanks for your ongoing support, it makes a real difference for those with epilepsy and seizures and their families and friends in our NYC community!

EPILEPSY-FOUNDATION_190922_INTO-THE-LIGHT-WALK_0068 1_EDIT

EFMNY logos 1 (High Res)

Virtual 9th Annual Walk to End Epilepsy in NYC!

Join the Epilepsy Foundation of Metropolitan New York as we celebrate epilepsy awareness and join in a virtual walk to bring epilepsy “Into The Light.” Our goal is to make this the largest and most successful annual epilepsy awareness event yet, and with your generous participation we will do just that!

Virtually walk to let the world know that this fourth most common neurological disease needs attention, advocacy and support! Virtually walk to show your commitment to supporting one another and to making a true difference for our shared cause!

We look forward to greeting all of the returning Teams and Individuals and to welcoming those of you who are participating for the first time. The special spirit of the persons who gather together – virtually this year – to celebrate the cause of epilepsy makes this a truly special occasion for all participants.

Whether you are forming a Team as a Team Captain, joining a Team as a Team Member, walking as an Individual, and/or making a Thoughtful Donation, Your Generous Support is so Vitally Appreciated this year. Please visit our GoFundMe campaign here:

REGISTER. DONATE. SHARE.

TCSF_Logos2-16_EDIT

The Walk is such a truly beautiful testament to how NYC can come together in a shared spirit of caring and giving, in common support of the vitally important cause of being there for those with epilepsy and seizures and their families in our community.

-Team Captain from the 2019 Walk

2020 Virtual Walk_LOGOS-Final-Final I

For more Annual Walk information, please contact Chilton Harper, MPA at:

charper@efmny.org or 917-856-5717


EFMNY 2020 Online Auction

Wednesday, June 17 – Sunday, August 2, 2020
Closing at 10pm!

EFMNY_EF logos (High Res)

In the name of the Epilepsy Foundation of Metropolitan New York (EFMNY) directors and staff, we are pleased to announce our EFMNY 2020 Online Auction, that will run from Wednesday, June 17th to Sunday, August 2nd closing at 10pm!

THE ONLINE AUCTION HAS BEEN EXTENDED!

THANK YOU FOR YOUR CONTINUED DONATION AND SUPPORT!!

In these very challenging times of the COVID-19 pandemic, we express our fullest sympathy and support for all of our fellow NYC community citizens and their families who have been profoundly and personally impacted by this awful tragedy. All of us at the EFMNY hear their voices. At this time, we also hear the deserving voices of those among us in this community who continue to experience epilepsy and seizures and their families. It is in this spirit of shared compassion for those less fortunate than ourselves that we are holding our EFMNY 2020 Online Auction.

MANHATTAN SKYLINE

Please know that your generosity in supporting our auction helps us to fulfill our unique mission in our community to provide epilepsy awareness, advocacy and vital services/supports, not only to individuals and families affected by epilepsy but also to raise awareness within and beyond our community. Our programs include, but are not limited to: individual and family counseling, seizure recognition and first aid training, vocational services and supports and community education advocacy and referrals. For more information please visit our website at www.efmny.org

TCSF_Logos2-16_EDIT

Additionally, EFMNY is proud to have as a valued partner in our 2020 online auction, The Cute Syndrome Foundation, an important organization which is working diligently in promoting the critical research into and attendant public awareness of SCN8A DEE, a rare disorder that is caused by genetic mutations in the gene SCN8A. For more information, please visit: www.thecutesyndrome.com

For any questions please contact Chilton Harper, MPA at:

charper@efmny.org or 917-856-5717


2019 Annual Into The Light Holiday Campaign
with Giving Tuesday, December 3!

Crowdrise Holiday_graphic

Tuesday, December 3, 2019 – Monday, January 6, 2020

Please join the Epilepsy Foundation of Metropolitan New York’s 2019 Annual Into The Light Holiday Campaign to build our community, raise epilepsy awareness and bring epilepsy “Into the Light.”

If you or someone you care about has been diagnosed with epilepsy you know how hard that diagnosis can be. Why me or my child? How do I tell my friends? What do I do now?

Our “Into The Light” campaign is designed to let persons know there are treatments to access, resources to guide them and a community to support them. These programs are free of charge, open to all, and help to raise epilepsy awareness, provide education within and beyond our community, and empower individuals and families affected by epilepsy and seizure disorder. Please consider the experience of the following Epilepsy NYC community members, all now serving as epilepsy awareness advocates.

Happy Holidays to All!

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


TCS New York City Marathon

Sunday, November 3, 2019
New York, NY

AvE_TCS_logos

TCS_Chilton 1

Athletes vs Epilepsy is once again partnered with the TCS New York City Marathon!
We are heading back to the Big Apple for the 2019 TCS New York City Marathon! Join other AvE team members raising funds and awareness for the Epilepsy Foundation, and for the Epilepsy Foundation of Metropolitan New York.
For more information— http://epilepsyfoundation.donordrive.com/event/TCSNYC


CT COLOR WTEE LONG HORIZONTAL LOCKUP

IS PROUD TO ANNOUNCE

8th Annual Into The Light Walk for Epilepsy Awareness

EFMNY-ITL-Walk-2019-EventsII

Sunday, September 22, 2019

Pier 25, Hudson River Park, NYC

Join the Epilepsy Foundation of Metropolitan New York as we celebrate epilepsy awareness and walk to bring epilepsy “Into The Light.” Once again this year our goal is to make this the largest and most successful annual epilepsy awareness event in our NYC community, and with your generous participation we will do just that!

Walk to let the world know that this fourth most common neurological disease needs attention, advocacy and support! Last year the Walk united over 1,000 persons, who showed their commitment to supporting one another and to making a true difference in the lives of those with epilepsy and seizures, and their families.

We look forward to greeting all the returning Teams and Individuals and to meeting those of you who are attending for the first time. The special spirit of the persons who gather together to celebrate the cause of epilepsy makes this a truly special occasion for all participants.

The EFMNY will welcome everyone once more with check-in starting at 9 AM, opening ceremonies at 11 AM and the Walk at 11:30 AM. But once the Walk is completed why not make a day of it in Lower Manhattan and enjoy yourself!

“The Walk is such a truly beautiful testament to how NYC can come together in a shared spirit of caring and giving, in common support of the vitally important cause of being there for those with epilepsy and seizures and their families in our community.”

2019 Annual Walk_Medical_FINAL

—Team Captain from the 2018 Walk

Click to REGISTER or DONATE: EpilepsyIntoTheLight2019

For more Annual Walk information, please contact Chilton Harper, MPA at:

charper@efmny.org or 917-856-5717


Seize The Cure Epilepsy Awareness Concert & Forum Series

Saturday, August 10, 2019
Doors Open 1:00PM – Start Time 2:00PM

Bronx YMCA

2 Castle Hill Ave
Bronx, NY 10473

8_10_19Bronx(1)

For more information please email info@seizethecure4epilepsy.com and for online donations visit www.SeizetheCure4Epilepsy.com


United Airlines NYC Half Marathon 2019

Sunday, March 17, 2019

#UnitedNYCHalf

NYRR-2019-Half-EFMNY-FLYER-1

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the 2019 United Airlines NYC Half Marathon!

When you support Team EFMNY, you are helping us raise epilepsy awareness and further our Into The Light programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The United NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners and support Team EFMNY today! »


4th Annual Into The Light Dinner Gala

EFMNY-ITL-Dinner-Gala-image-2019-FINAL.2

Thursday, April 18, 2019

Battery Gardens, New York City

Cocktail Reception 6PM
Dinner & Awards 7PM
Gala Auction all Evening

Please join the EFMNY as we celebrate our 53rd year of providing vital services and support to the NYC epilepsy community, and as we gather in recognition of this year’s Distinguished Service Honoree Dr. Shahin Nouri, who is the Founder and Director of the Comprehensive Epilepsy Center at New York Presbyterian – Brooklyn Methodist Hospital.

Possessing a calm, pleasant, and optimistic personality, Shahin is a truly inspiring person, with his professional colleagues, and more importantly, with those most deserving persons whom he serves at his medical center. For many years now, the EFMNY has been most fortunate to count on Shahin as one of the most talented, supportive, and generous Members of its prestigious Professional Advisory Board. Seldom does any agency community-based event or activity happen, without him being actively involved throughout, always willing to make that special extra effort in support of our shared vital mission for those with epilepsy and seizures and their families in the NYC area.

Shahin received his medical degree from the University Erlangen-Nuremberg, Germany. He was a Research Fellow there and at Mt. Sinai Medical Center in New York. Shahin completed his residency in neurology at Georgetown University Medical Center. He did a fellowship in epilepsy and neurophysiology at NYU Medical Center. Shahin is certified by the American Board of Psychiatry and Neurology in Neurology, Clinical Neurophysiology, and Epilepsy.

It is a great honor for the EFMNY to recognize Shahin this year. He is an inspiration to all of us.

Website LOGOS (UPDATED 4.13)

All funds raised will go directly towards supporting our vocational, educational, advocacy, and clinical services. Enjoy the stunning vista of New York Harbor amid friends and colleagues, while making a genuine difference in the lives of persons with epilepsy.

Register Now:

160409_EPILEPSY_FOUNDATION_039_website_copy

Table for 10 - $3,000
Registrant's name:
Individual Seats - $300 each
Quantity:
Registrant's name:
I will not be attending but wish to donate.
Amount:
Donor's name:

Please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717 for additional Sponsorship, Ticket, and Donation information »


2018 Annual Into The Light Holiday Campaign
with Giving Tuesday, November 27!

Crowdrise Holiday_graphic

Tuesday, November 27, 2018 – Monday, January 7, 2019

Please join the Epilepsy Foundation of Metropolitan New York’s 2018 Annual Into The Light Holiday Campaign to build our community, raise epilepsy awareness and bring epilepsy “Into the Light.”

If you or someone you care about has been diagnosed with epilepsy you know how hard that diagnosis can be. Why me or my child? How do I tell my friends? What do I do now?

Our “Into The Light” campaign is designed to let persons know there are treatments to access, resources to guide them and a community to support them. These programs are free of charge, open to all, and help to raise epilepsy awareness, provide education within and beyond our community, and empower individuals and families affected by epilepsy and seizure disorder. Please consider the experience of the following Epilepsy NYC community members, all now serving as epilepsy awareness advocates.

Happy Holidays to All!

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


Studio E: Epilepsy Art Therapy Exhibit

StudioELogo

Friday, November 30, 2018 – Friday, January 4, 2019

American Express Building, Main Lobby
65 Broadway, New York, 10006

FEATURED ARTISTS:
Heydi De Los Santos, Mark A. Elijio, Stephen Julien, Christine Negrón, Kinja Nsimba, Felipe Rosado, Elena Shweky, Edwin Valencia

EFMNY is proud to present its 5th Annual Studio E Exhibit, showcasing an ambitious and forward-looking Epilepsy Art Therapy Program. Over the course of 8 weeks, participants worked with a licensed art therapist to create art pieces using visual mediums in a group setting. The resulting body of work represents the artists’ creativity and unique spirit.

Please stop by and visit our Studio E Gallery Exhibit where we are honored to host and display the incredible works produced by our Studio-E artists this year.

EFMNY_Website_Final_Group_2018_II

EFMNY_Website_Logos_2018

In partnership with:

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


TCS New York City Marathon

Sunday, November 4, 2018
New York, NY

AvE_TCS_logos

TCS_Chilton 1

Athletes vs Epilepsy is once again partnered with the TCS New York City Marathon!
We are heading back to the Big Apple for the 2018 TCS New York City Marathon! Join other AvE team members raising funds and awareness for the Epilepsy Foundation, and for the Epilepsy Foundation of Metropolitan New York.
For more information— http://epilepsyfoundation.donordrive.com/event/TCSNYC


Seize The Cure Epilepsy Awareness Concert & Forum Series

Sunday, November 4, 2018
Doors Open 1:00PM – Start Time 2:00PM

Bronx YMCA

2 Castle Hill Ave
Bronx, NY 10473

Seize the Cure_2018

For more information and online donations visit www.SeizetheCure4Epilepsy.com


7th Annual Into The Light Walk for Epilepsy Awareness

EFMNY-ITL-Walk-2018-Events

Sunday, September 30, 2018

Pier 25, Hudson River Park, NYC

Join the Epilepsy Foundation of Metropolitan New York as we celebrate epilepsy awareness and walk to bring epilepsy “Into The Light.” Once again this year our goal is to make this the largest and most successful annual epilepsy awareness event in our NYC community, and with your generous participation we will do just that!

Walk to let the world know that this fourth most common neurological disease needs attention, advocacy and support! Last year the Walk united over 1,200 persons, who showed their commitment to supporting one another and to making a true difference in the lives of those with epilepsy and seizures, and their families.

We look forward to greeting all the returning Teams and Individuals and to meeting those of you who are attending for the first time. The special spirit of the persons who gather together to celebrate the cause of epilepsy makes this a truly special occasion for all participants.

The EFMNY will welcome everyone once more with check-in at 9 AM, opening ceremonies at 10:30 AM and the Walk at 11 AM. But once the Walk is completed why not make a day of it in Lower Manhattan and enjoy yourself!

“It was such a wonderful day and our Team couldn’t have been more thrilled to be a part of such an incredible cause. The whole experience with raising money and having people sign up has been not only seamless but truly enjoyable. You are great at what you do…”

—Team Captain from the 2017 Walk

Banner LOGOS (UPDATED 9.13)

Click to REGISTER or DONATE: EpilepsyIntoTheLight2018

For more Annual Walk information, please contact Chilton Harper, MPA at:

charper@efmny.org or 917-856-5717


Seize The Cure Epilepsy Awareness Concert & Forum Series

Sunday, May 20, 2018
Doors Open 1:00PM – Start Time 2:00PM

KMC Entertainment Center

1184 E Gun Hill Rd
Bronx, NY 10469

5_20_18Bronx

For more information and online donations visit www.BXSeizethecure.com


3rd Annual Into The Light Dinner Gala

EFMNY-ITL-Dinner-Gala-Website-2018 (FINAL2)

Thursday, April 26, 2018

Battery Gardens, New York City

Cocktail Reception 6PM
Dinner & Awards 7PM
Gala Auction all Evening

Please join EFMNY as we celebrate our 52nd year of providing vital services and supports to the NYC epilepsy community, and as we gather in recognition of this year’s Distinguished Service Honorees Patricia McGoldrick NP, MPA and Steven M. Wolf MD. They share a unique collaborative practice covering two decades, building epilepsy and epilepsy surgery programs, running a Comprehensive Epilepsy Center & a Developmental Disability Center, reaching out to residential facilities, performing important research, and facilitating the translation of medical concepts into more accessible formats for patients and families. As untiring advocates for children with epilepsy, they generously serve on many Boards, speak multinationally, and are available to assist their colleagues. They have given forty years of their care and talents to the EFMNY Board. Most of all, they hold a special place in their hearts for those with developmental disabilities and the underserved. We are so honored to present them with this Award.

All funds raised will go directly towards supporting our vocational, educational, advocacy, and clinical services. Enjoy the stunning vista of New York Harbor amid friends and colleagues, while making a genuine difference in the lives of persons with epilepsy.

Banner LOGOS (UPDATED 4.16)

Register Now:

160409_EPILEPSY_FOUNDATION_039_website_copy

Table for 10 - $3,000
Registrant's name:
Individual Seats - $300 each
Quantity:
Registrant's name:
I will not be attending but wish to donate.
Amount:
Donor's name:

Please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717 for additional Sponsorship, Ticket, and Donation information »


United Airlines NYC Half Marathon 2018

Sunday, March 18, 2018

#UnitedNYCHalf

NYRR-2018-Half-EFMNY-FLYER-1

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the 2018 United Airlines NYC Half Marathon!

When you support Team EFMNY, you are helping us raise epilepsy awareness and further our Into The Light programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The United NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners and support Team EFMNY today! »


2017 Annual Into The Light Holiday Campaign
with Giving Tuesday, November 28!

Crowdrise Holiday_graphic

Tuesday, November 28, 2017 – Monday, January 8, 2018

Please join the Epilepsy Foundation of Metropolitan New York’s 2017 Annual Into The Light Holiday Campaign to build our community, raise epilepsy awareness and bring epilepsy “Into the Light.”

If you or someone you care about has been diagnosed with epilepsy you know how hard that diagnosis can be. Why me or my child? How do I tell my friends? What do I do now?

Our “Into The Light” campaign is designed to let persons know there are treatments to access, resources to guide them and a community to support them. These programs are free of charge, open to all, and help to raise epilepsy awareness, provide education within and beyond our community, and empower individuals and families affected by epilepsy and seizure disorder. Please consider the experience of the following Epilepsy NYC community members, all now serving as epilepsy awareness advocates.

Happy Holidays to All!

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


Studio E: Epilepsy Art Therapy Exhibit

Studio E - Epilepsy Art Therapy Program

December 1, 2017 – January 5, 2018

American Express Building, Main Lobby
65 Broadway, New York, 10006

FEATURED ARTISTS:
Heydi De Los Santos, Stephen Julien, Christine Negrón, Felipe Rosado, Jules Shapiro, Elena Shweky

EFMNY is proud to present its 4th Annual Studio E Exhibit, showcasing an ambitious and forward-looking Epilepsy Art Therapy Program. Over the course of 8 weeks, participants worked with a licensed art therapist to create art pieces using visual mediums in a group setting. The resulting body of work represents the artists’ creativity and unique spirit.

EFMNY_Website_Final_Group_2017

2327_Lundbeck_Epilepsylogo_Final

Please stop by and visit our Studio E Gallery Exhibit where we are honored to host and display the incredible works produced by our Studio-E artists this year.

In partnership with:

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


TCS New York City Marathon

Sunday, November 5, 2017
New York, NY

AvE_TCS_logos

Athletes vs Epilepsy is once again partnered with the TCS New York City Marathon!
We are heading back to the Big Apple for the 2017 TCS New York City Marathon! Join other AvE team members raising funds and awareness for the Epilepsy Foundation. Register today as only a limited number of entries are available.
For more information— http://epilepsyfoundation.donordrive.com/event/TCSNYC


6th Annual Into The Light Walk for Epilepsy Awareness

EFMNY-ITL-Walk-Events-2017 copy

Sunday, September 24, 2017
South Street Seaport, NY

Join the Epilepsy Foundation of Metropolitan New York as we celebrate epilepsy awareness and walk to bring epilepsy “Into The Light.” Once again this year our goal is to make this the largest and most successful annual epilepsy awareness event in our NYC community, and with your generous participation we will do just that!

Walk to let the world know that this fourth most common neurological disease needs attention, advocacy and support! Last year the Walk united over 1000 persons, who showed their commitment to supporting one another and to making a true difference in the lives of those with epilepsy and seizures, and their families.

We look forward to greeting all the returning Teams and Individuals and to meeting those of you who are attending for the first time. The special spirit of the persons who gather together to celebrate the cause of epilepsy makes this a truly special occasion for all participants.

The historic South Street Seaport will welcome everyone once more with check-in at 9 AM, opening ceremonies at 10:30 AM and the Walk at 11 AM. But once the Walk is completed why not make a day of it in Lower Manhattan and enjoy yourself!

“The Epilepsy Foundation of Metropolitan New York Annual Walk means so much to all of us who are affected one way or another by epilepsy in the lives of those whom we hold so dear. We look forward to being there in 2017, for the best Walk ever!”

—Team Captain from the 2016 Walk

Click to REGISTER or DONATE: EpilepsyIntoTheLight2017

For more Annual Walk information, please contact Chilton Harper, MPA at:

charper@efmny.org or 917-856-5717


Seize The Cure Epilepsy Awareness Concert & Forum

Sunday, May 21, 2017
Doors Open 1:00PM – Start Time 2:00PM

Peace December Headquarters

2006 Westchester Avenue
Bronx, NY 10462

May21


When Epilepsy Medications Fail

Tuesday, May 9, 2017
5:30PM – 7:30PM

Columbia Doctors

51 West 51st Street, 3rd Fl Conference Room
New York, NY 10019

ColumbiaDoctors5_9_17-3


The Harriet Tubman Learning Center
& Community School Health Fair Event

Saturday, May 6, 2017
11:00AM – 4:00PM

The Harriet Tubman Learning Center

250 West 127th Street
New York, NY 10027

May 6 event


2nd Annual Into The Light Dinner Gala

EFMNY-ITL-Dinner-Gala-website-image-2017-II

Thursday, April 20, 2017

Battery Gardens, New York City

Cocktail Reception 6PM
Dinner & Awards 7PM
Gala Auction all Evening

Please join EFMNY as we celebrate our 51st year of providing vital services and supports to the Epilepsy community, and as we gather to honor Blanca Vázquez, MD, Epileptologist, newly appointed Chair of our Professional Advisory Board, and nationally recognized Advocate for the provision of quality care to persons with Epilepsy and to those persons who are underserved. Blanca has dedicated over 25 years of support to the EFMNY, and is aligned with our mission to raise Epilepsy awareness while providing quality social services to persons with Epilepsy and seizures and their families in the NYC community.

All funds raised will go directly towards supporting our vocational, educational, advocacy, and clinical services. Enjoy the stunning vista of New York Harbor amid friends and colleagues, while making a genuine difference in the lives of persons with epilepsy.

Register Now:

Table for 10 - $3,000
Registrant's name:
Individual Seats - $300 each
Quantity:
Registrant's name:
I will not be attending but wish to donate.
Amount:
Donor's name:

Please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717 for additional Sponsorship, Ticket, and Donation information »


United Airlines NYC Half Marathon 2017

NYRR-2017-Half-EFMNY-FLYER-WEBSITE

Sunday, March 19, 2017

#UnitedNYCHalf

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the 2017 United Airlines NYC Half Marathon!

When you support Team EFMNY, you are helping us raise epilepsy awareness and further our Into The Light programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners and support Team EFMNY today! »


2016 Annual Into The Light Holiday Campaign
Crowdrise Holiday_graphic

Tuesday, November 29, 2016 – Friday January 6, 2017

Please join the Epilepsy Foundation of Metropolitan New York’s 2016 Annual Into The Light Holiday Campaign to build our community, raise epilepsy awareness and bring epilepsy “Into the Light.”

If you or someone you care about has been diagnosed with epilepsy you know how hard that diagnosis can be. Why me or my child? How do I tell my friends? What do I do now?

Our “Into The Light” campaign is designed to let persons know there are treatments to access, resources to guide them and a community to support them. These programs are free of charge, open to all, and help to raise epilepsy awareness, provide education within and beyond our community, and empower individuals and families affected by epilepsy and seizure disorder. Please consider the experience of the following Epilepsy NYC community members, all now serving as epilepsy awareness advocates.

Happy Holidays to All!

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


Studio E: Epilepsy Art Therapy Exhibit

Studio E - Epilepsy Art Therapy Program

December 2, 2016 – early January, 2017

American Express Building, Main Lobby
65 Broadway, New York, 10006

FEATURED ARTISTS:
Peter Demeo, Heydi De Los Santos, Michael Jones, Stephen Julien, Alexander Mark Ronan, Jules Shapiro, Elena Shweky, Edwin Valencia

EFMNY is proud to present its 3rd Annual Studio E Exhibit, showcasing an ambitious and forward-looking Epilepsy Art Therapy Program. Over the course of 8 weeks, participants worked with a licensed art therapist to create art pieces using visual mediums in a group setting. The resulting body of work represents the artists’ creativity and unique spirit.

Please stop by and visit our Studio E Gallery Exhibit where we are honored to host and display the incredible works produced by our Studio-E artists this year.

EFMNY_Website_Final_Group_2016

2327_Lundbeck_Epilepsylogo_Final

In partnership with:

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


Let’s Talk About Epilepsy, Brooklyn!

EFMNY-ITL-Walk-2016-website 3

Friday, November 4, 2016
10AM – 1PM

Brooklyn Borough Hall, Community Room/Rotunda
209 Joralemon Street, Brooklyn, NY

A health awareness symposium and expert panel discussion on epilepsy, seizures, and neurocritical care in partnership with the Brooklyn Borough President Eric L. Adams.

What: Let’s Talk About Epilepsy, Brooklyn! is an event held in National Epilepsy Month to increase awareness, enhance healthcare options, provide critical resources/information on current technologies, honor a Brooklyn-based leader in patient care for epilepsy, seizures and neurocritical health, and honor a community advocate/volunteer in the fight against epilepsy.

Who: Brooklyn Community Boards, Parent Teacher Associations, Local Churches, Foster Care Agencies, MTA Executives, Community Partners, Youth Groups, Sports Groups, Local Organizations, Veterans, and others.

Itinerary includes: Remarks from the Brooklyn Borough President Eric L. Adams, remarks from the Epilepsy Foundation of Metropolitan New York (EFMNY) Executive Director, Pamela Conford, MSW, and Esteemed Panelists: Dr. Sharon Nouri, Director Comprehensive Epilepsy Center of New York Methodist Hospital; Dr. Arthur Grant, Director, Comprehensive Epilepsy of SUNY Downstate Medical Center; and Dr. Blanca Vásquez of Lutheran Hospital, includes local press coverage.

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717


5th Annual Into The Light Walk for Epilepsy Awareness

EFMNY-ITL-Walk-2016-website 3

Sunday, September 25, 2016
South Street Seaport, NY

Join the Epilepsy Foundation of Metropolitan New York as we celebrate epilepsy awareness and walk to bring epilepsy “Into The Light.” Our goal is to make this-the largest epilepsy awareness event in our community-the most successful one yet!

Walk to let the world know that this fourth most common neurological disease needs attention, advocacy and support! Last year the walk united over 1000 persons, who showed their commitment to supporting one another and to making a difference.

We look forward to greeting all the returning Teams and Individuals and to meeting those of you who are attending for the first time. The special spirit of the persons who gather together to celebrate the cause of epilepsy makes this a truly special occasion for all participants.

The historic South Street Seaport will welcome everyone once more with check-in at 9 AM, opening ceremonies at 10:30 AM and the Walk at 11 AM. But once the Walk is completed why not make a day of it in Lower Manhattan and enjoy yourself!

“…we really enjoyed the Walk and we are already looking forward to next year’s event. We are planning on an even bigger Team so roll on 2016!”

—Team Captain from the 2015 Walk


ALL-YOU-CAN-EAT BREAKFAST in Support of EFMNY!

Sunday, May 15, 2016Knights of Columbus Breakfast (DRAFT3)
8AM – 12PM

Father John C. Drumgoole Knights of Columbus Council # 5917
397 Clarke Avenue (corner of St. Patrick’s Place & Clarke Avenue)
Staten Island, NY 10306

The Fr. John C. Drumgoole Knights of Columbus Council # 5917 is serving breakfast, Sunday, May 15th, starting at 8 AM and finishing at Noon. The breakfast features an all-you-can-eat offering of pancakes, scrambled eggs, sausage, orange juice, and coffee or tea, all for just $5 for adults, $3 for children (under 12), and FREE for children (under 5). The breakfast will be served at the above-listed address.

The Charity to be supported by your generous participation at the breakfast will be The Epilepsy Foundation of Metropolitan New York, the only specialized social service agency in New York City that is dedicated to providing those suffering from Epilepsy with the critical care which they need.

Please come and support the Knights, and their charitable work for those with Epilepsy and their families in our community, and enjoy a tasty breakfast!


Epilepsy Across The Life SpanEpilepsy-Across-Life-Span-website-bar

April 25, 2016

Pace University
Lower Manhattan, NY

Presented in collaboration with NewYork-Presbyterian/ Lower Manhattan Hospital, Weill Cornell Medicine, Epilepsy Foundation of Metropolitan New York and Pace University.

PACE University-group-logos


Into The Light Dinner Gala

April 7, 2016

Please join EFMNY as we celebrate our 50th year of providing vital services and supports to the epilepsy community, and as we gather to honor Epileptologist, Researcher, and long time Chair of our Professional Advisory Board Shlomo Shinnar, MD PhD, and Ruth Shinnar, RN MSN, Clinical Nurse Specialist. Both have dedicated over 20 years in strong support of the EFMNY and its mission of providing help, hope, and support to persons with epilepsy and their families.

All funds raised will go directly towards supporting our vocational, educational, advocacy, and clinical services. Enjoy the stunning vista of New York Harbor amid friends and colleagues, while making a genuine difference in the lives of persons with epilepsy.

Register Now:

Table for 10 - $3,000
Registrant's name:
Individual Seats - $300 each
Quantity:
Registrant's name:
I will not be attending but wish to donate.
Amount:
Donor's name:

Contact us for additional Sponsorship, Ticket, and Donation information »

Final layout (WEBSITE 4-1)


Team EFMNY - NYC Half Marathon

United Airlines NYC Half Marathon 2016

March 20, 2016

The Epilepsy Foundation of Metropolitan New York is an official charity partner of the 2016 United Airlines NYC Half Marathon!

When you support Team EFMNY, you are helping us raise epilepsy awareness and further our Into The Light programs, which are free of charge, open to all and serve to empower individuals and families affected by epilepsy and seizure disorder. These programs let others know they are not alone, and assist those navigating through life with epilepsy by providing information on access to treatments, resources and a supportive community.

The NYC Half provides you with an opportunity to transform lives in a direct and meaningful way. By supporting the runners of Team EFMNY, you can truly make every mile count.

Meet our runners and support Team EFMNY today! »


Studio E Epilepsy Art Therapy Exhibit

EFMNY

December 4, 2015 – January 4, 2016

EFMNY is proud to present its 2nd Annual Studio E Exhibit, showcasing an ambitious and forward-looking Epilepsy Art Therapy Program. This important exhibit showcases the work created by participants of the EFMNY’s Studio E Art Therapy Program sponsored by Lundbeck.

Visit the exhibition today and show your support for the artists and EFMNY’s unique mission to provide epilepsy awareness, advocacy, and vital services and supports to individuals and families affected by epilepsy.

Click here to view this year’s artwork »


Infantile Spasms Awareness Week

December 1 – December 7, 2015

Infantile Spasms is a very rare form of epilepsy that typically begins within the first few months of life and carries the potential to put an infant’s long-term development at risk. Join the Epilepsy Foundation of Metropolitan New York and Mallinckrodt Pharmaceuticals as we lead the way in educating pediatricians, neurologists, parents and caregivers about the latest information on the diagnosis and treatment of Infantile Spasms.

In honor of Infantile Spasms Awareness Week, please share this video with friends and family, and help us bring awareness to the world.



Epilepsy Foundation Supports CARERS Act

EFMNY Executive Director Pamela Conford joined Senator Kirsten Gillibrand (NY) and Senator Cory Booker (NJ) in NYC this week to discuss the CARERS Act legislation to reschedule cannabis/ medical marijuana.

Sen. Kirsten Gillibrand w/ NYC epilepsy advocate Paula Notari - CARERS Act
Senator Kirsten Gillibrand w/ NYC epilepsy advocate Paula Notari, mother of baby Emma Rose Mazurek, speaking to NY/ NJ families about the CARERS Act

EFMNY's Pam Conford and Sen. Cory Booker in Support of CARERS Act to Reschedule Cannabis

EFMNY Director Pamela and Senator Cory Booker in NYC supporting the CARERS Act to Reschedule Cannabis

For more information on on how the Compassionate Access and Research Expansion and Respect States (CARERS) Act relates to epilepsy research and treatment, please see our blog post on #EpilepsyNYC.

Tell us what you think! Join the #CARERSAct conversation on the EFMNY Twitter and Facebook pages!

EPILEPSY FOUNDATION ACTION ALERT: Take action! Urge your Senators to support the CARERS Act to facilitate research on cannabis and help the epilepsy community gain safe, legal access to this treatment option. For more information on this Epilepsy Foundation ACTION ALERT, and how you can get involved, please visit the official EFA Action Alert page.

Learn more about how the CARERS Act impacts epilepsy research »


Caregiver Webinar Series and Telephone Support Group

On-going/ Year-round

The Epilepsy Foundation of Metropolitan New York’s “Caregiver Webinar Series” and “Telephone Support Groups” are on-going programs that provide parents and caregivers with an opportunity to share stories, resources and coping strategies with one another.

For more information on these programs, please click here »

Para más información en español sobre este programa, por favor haga clic aquí »